Who We Are

The SBF, a not-for-profit organisation was formed by Medical Professionals and parents of Spina Bifida Children who have been involved in the care and upbringing of Spina Bifida patients in India for more than a decade. Since 1997, we - a group of doctors, parents and well wishers have been consistently working for the cause of improving the lives of Spina Bifida (SB) patients and for preventing SB.

We have -
  • Helped more than 400 patients get the correct and complete medical treatment and rehabilitation irrespective of whether they could afford the same.
  • Approached schools and urged the authorities to admit SB children into their normal schools.
  • Held several free Medical and Counselling camps throughout India and overseas.
  • Arranged lectures to diverse groups such as the Rotarians, the Dais(midwives) of Kutch (Gujarat), medicos and paramedics from a leading medical college in Indore and the young women from elite Mumbai colleges.to create awareness about SB and its prevention.
  • Organised International Medical Updates on SB and its management for the medical fraternity.
  • Launched a nation-wide campaign for SB prevention called Folic Acid ki Jai.
  • Started the first Parents Support Group for SB in India
  • Started a quarterly Newsletter to connect with patients, families, doctors and others throughout the country and to our overseas members


History

The Spina Bifida Foundation is a non-profit organization which was formed by Medical Professionals and parents of Spina Bifida Children who have been involved in the care and upbringing of Spina Bifida patients in India for more than a decade. Since 1997, we - a group of doctors, parents and well-wishers have been consistently working for the cause of improving the lives of Spina Bifida (SB) patients and for preventing SB.

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Mission

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Vision

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Founders

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Partners


Our Past Supporters

Ratan Tata Trusts
Shemaroo Pvt. Ltd.
Ashapura Foundation
Fuji Films
Shree Aurobindo Institute of Medical Sciences
Jolly Gym khaana